Day 97

My clinic appointment is normally on Thursday (today), but since that is Thanksgiving this week, I went in yesterday. My blood counts were good, with the WBC going down to 3.7, but still in a good range. I took Neupogen just once last week (down from 2 and 3 times per week), and the doctor said to try cutting it out altogether this week. Also, my absolute neutrophil count was at 2.8, which is very good.

WBC – 3.7
Plt – 204
Hgb – 11.3
ANC – 2.8

In my previous blog entry, I noted that since some of my GvHD symptoms had subsided, I decided (with the doctor) to not start taking the Prednisone he had prescribed. Well, I continued to feel better all week, so I never started the Prednisone, and yesterday, the doctor said that it was probably a good decision. I believe that steroids like Prednisone, if taken over long periods, have significant unintended negative effects, so not starting it until really needed is good. I do still have a mild skin rash accompanied by mild itching, but it is quite bearable for now.

The PA asked me how I was doing psychically/emotionally. I told her that I was doing OK, but that I was feeling more how long a haul it is. This home confinement has been going on for 3 months now and I have some unknown number of months left. It’s not terrible, but I feel a little like the convict who is sentenced to home confinement, except that I don’t have the ankle bracelet. I told the PA that I am increasingly missing some of the foods that are restricted for me. She asked for an example, so I said I would love to have a hoagie for instance. She said that maybe in another week or two, I could treat myself to one, but it still can’t become a regular thing in my diet. I also miss salads and fresh fruits.

This being Thanksgiving Day, there are two things that are prominent in my mind for which I am especially thankful. I thank the Lord for life itself and for so many family and friends whom I love and who love and support me in return.

Love,
Justin